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Monday, January 22, 2007

Please pray for Daniel!!!!


Meet our nephew Danny. As most of you know Danny's brother and his wife adopted him back in August. He has been in their care since he was 3 days old. Danny has suffered severe epilepsy for about 8 months now without any relief. They have tried all sorts of medicine etc... Everyone has been baffled. He is behind developmentally due to the siezures he is 26 months old and has not been able to do what a boy his age does because he is missing out on half of his life due the hundreds of siezures a day.

This is what Steve told my husband Danny on the phone today and Danny asked him to email it so I took it upon myself to post it so prayer could be made on his behalf. We know the Lord can take this away but if this is his lot pray that he can endure this and never remember it.... Thanks

Hi All,

Danny and Cyndie O here is a brief summary of the prep work for the procedure Danny had done this week end.

1. He was completely wrapped in a large bed sheet, like a burrito. Every thing except his head was wrapped.

2. He was then strapped down to the bed with 28 strips of tape. Each starting on one side of the bed, crossing his body and attaching to the opposite side. He was now completely unable to move his body.


3. He had 36 electrodes attached to his head. One on each Temple and four on his upper back. The area for each electrode had to be rubbed with a solution for good contact and a special adhesive gel applied to attach the electrode. Then a piece of tape put over each electrode. This was repeated 42 times. During all of two adults held his head to keep it from moving while a third adult applied the electrodes.

4. When this was done his head was completely wrapped in gauze to cover the electrodes. The gauze also wrapped under his chin to keep it secured onto his head. The gauze was then tapped down to make it secure. Finally, a rubber mesh netting was pulled over all of this and tapped down tho prevent him from pulling any thing off. All the electrodes were passed through this netting in back is his head like a giant pony tail. All the wires were tapped every ten inches to keep them together. He would have about 4 ft to move for 48 hours. Steps 1-4 took about 45 minutes

5. When this was completed, the nurse freed up his left arm and five vials of blood were taken while he was still strapped down. This took about 10 minutes.

6. All together he was strapped down for about an hour. He cried for help the whole time saying "All Done".

7. For the next 48 hours he was confined to a 4 ft space. He had to sleep with all this on his head and needed to be watched all night to make sure he did not strangle himself while he slept.

He did such a great job! He played, ate, slept with little frustration. We could not have wished for him to have done any better. We will now be waiting for the doctor's to review the EEG and Video. Please keep him in your prayers. He is such a gentle and joyful child.

4 comments:

Anonymous said...

I'll def be prayin too!! Love you!

Anonymous said...

I could hardly get thru this post without crying. I had to watch my son be wrapped like a burrito for stitches that took 15 minutes. I can't fathom how heartwrenching this is for the parents. May God have mercy on this child and put an end to the suffering and be glorified thru his healing!

Anonymous said...

may the Lord bless and heal little Danny!

hugo der knabe said...

good health and best wishes for Danny ,nice photo and better model